Thursday, April 28, 2011

Auction of the Heart

Hi everyone!

We went to the doctor this morning! Our pediatrician put her on a high calorie diet. Meaning whatever I feed her I have to put butter/mayo/sour cream/grated cheese/cheese sauce/gravy on it. Anything to give her extra calories. I was told to also give her "Boost Formula" to help her gain weight. This is a high calorie "milk" drink (like pediasure). She labeled Kailey as "FTT" or Failure To Thrive. :[  But told me not to worry because that is a general term meaning that she's not growing at the same rate that she was as a baby, or growing as they would like to see her on the growth carts... BUT she DID gain 2 more pounds since last month!! (she's at 24 lbs now!)

All of this is because she needs to be a certain weight before they can do the surgery. Not exactly sure what the goal is here... but probably somewhere between 25-30lbs. So, she's getting close! :] And with all the extra calories, she will be there in no time!

As most of you know, I am the owner/designer of Little Teapot Designs. I would like to host an auction on my facebook page in order to help pay some of the medical expenses associated with my daughters up coming surgery. If you would be interested, I will be auctioning off baby items that I make. Such as:
Baby blankets,
Tag blankets,
Rhinestone onesies,
Diaper cakes,
Diaper Bags,
Cloth baby shoes,
Burp cloths,
Wash cloths,
Cloth diapers,
Name blocks,
Alphabet blocks,
Keepsake box,
Wipe case,
Diaper carry case,
Car seat canopies,

Please let me know if you will be interested. And let you're friends and family know about it too please! We really do need all the help we can get!! Thanks!

Edited to tell ya'll that I forgot to mention that Cohen got his FIRST tooth today!! Yeah I know, a little late huh? haha. He is 7 months old... and Kailey did get her first tooth at 5.5 months... so I think he's going to be slow on a few things... my little fatty! Oh, that reminds me, he now weighs in at 22 lbs!! Only 2 lbs away from Kailey!! haha. I <3 my Chunky Monkey Man! (his initials are CMM--Cohen Michael Mote--Chunky Monkey Man!)

<3 Kayla

Friday, April 22, 2011

New OB

So, yesterday morning I went to a new OB/GYN to have a consult for Mirena! I really think I like this guy. We got to discussing my previous pregnancies, and how the deliveries went... And as I told him about how my epidural didn't work with Cohen's delivery he got rather angry that my doctors wouldn't try to put in a new catheter. He really seems like he cares about THE PATIENT and not just getting paid. He even said that in 2008 he switched hospitals that he delivers at because the one he was at wasn't catering to the pregnant ladies needs as he would expect them to!

anyways... lol. about my Mirena! I have to wait until I take out my NuvaRing on the 7th. Then I can call them and schedule the appointment to get it placed!! YAY! I'm so happy! lol. I don't have to worry about it anymore! for 5 whole years! Woo Hoo! haha. anyways. The reason for so much excitement is that since my husband lost his job in February, we don't have enough money to pay for NuvaRing anymore ($80 a month!). So now that I'm getting this, we won't have to worry about the money issue with my birth control. I'm also excited because I got pregnant on Yaz and was scared that I'd get pregnant on the ring too... lol. But Mirena really is 99.9% effective since it blocks the Fallopian tubes! :P

On another note... I brought Kailey's old Exer-Saucer upstairs for Cohen to play in... Well, Kailey decided she wanted in it. She started bouncing up and down really fast and Cohen started screaming at the top of his lungs!! It was hilarious! Every time she jumped he screamed and stiffened his arms out in front of him! He looked absolutely terrified! Poor baby... and all I could do was laugh!

Kailey has some new words!!
-Meany (mimi)
-beep beep
-night night

And after her dentist appointment last Tuesday she used the potty!! She's getting so big so fast!! She'll be 2 in four months!! Cohen had his follow up hearing screening (since he failed it in the hospital) and he passed!! :] They BOTH have to get shots on the 28th!! :[

Well, hope everyone has a good Easter weekend!!

<3 Kayla

Friday, April 15, 2011

We need to fix it

As you all know, Kailey had her heart check-up today. they took an ultrasound of her heart which confirmed the size. It is 1/3 of an inch!! Which on an adult heart, isn't so big... but on my small daughter's heart it is. This means that they are going to have to close the hole by the time she turns 3. We go back August 17 to check it again, that's when we will have to schedule the procedure...

I was almost at a loss for words when i heard the cardiologist say "we'll absolutely need to fix it". I think my heart almost fell out of my chest. My precious baby girl has a broken heart- literally... That breaks my heart. My little girl is going to have to go through a procedure to fix her heart before she is even 3 years old. I know that this is the best option for my girl. I know that this will improve her life. This will help her in so many ways.

The risk of NOT doing the procedure compared to DOING the procedure is higher. If we do not do this procedure now, then the pressure and strain that the murmur is putting on her heart could cause significant damage to her heart. I can also cause the heart to weaken, in turn causing her heart to not pump her blood as efficiently. Thus as she gets older it will cause more stress and more weakening. And as she gets older and starts to have children of her own, that will also put lots of stress and pressure on her weak heart. Also the extra oxygenated blood that is flowing back into the lungs from the hole can cause blood vessel damage in her lungs. So obviously we need to do this procedure, but we will definitely be getting a second opinion.

On another note, the cardiologist says that he doesn't suspect that the hole is causing her insignificant weight gain. She has only gained 2 pounds since her first birthday. He thinks that she might have a problem absorbing fat from her food. We have to see a nutritionist so see if we can fix her diet...

So, hopefully, my sweet baby girl will be okay. Please send us prayers, we need them dearly. :]

My beautiful Kailey

<3 Kayla

Thursday, April 14, 2011

Kailey's Heart

My little girl was born with a heart murmur. For those of you who don't know what that means... well, simply put, she has a hole in her heart. :[ They noticed this at her 4 month check-up, and sent us to see a pediatric cardiologist. Here are all the details about ASD-more so of Kailey's ASD.

In a healthy heart, blood that returns from the body to the right-side filling chamber (right atrium) is low in oxygen. This blood passes to the right-side pumping chamber (right ventricle), and then to the lungs to receive oxygen. The blood that has been enriched with oxygen returns to the left atrium, and then to the left ventricle. It's then pumped out to the body through the aorta, a large blood vessel that carries the blood to the smaller blood vessels in the body. The right and left filling chambers are separated by a thin shared wall, called the atrial septum.

Kailey’s heart has an opening in the wall (septum) between the atria (the two top chambers). [See picture above to see what Kailey's heart looks like.] As a result, some oxygenated blood from the left atrium flows through the hole in the septum into the right atrium, where it mixes with oxygen-poor blood and increases the total amount of blood that flows toward the lungs. The increased blood flow to the lungs creates a swishing sound, known as a heart murmur (or echo). It's not clear why, but ASDs are more common in girls than in boys (Luckily, Cohen does NOT have this!). ASD is  caused when a problem occurs during the formation of the heart during the first few weeks after conception. In some cases, the tendency to develop an ASD might be genetic, which in Kailey’s case it is. Her father also had a heart murmur when he was born. Genetic syndromes can cause extra or missing pieces of chromosomes that can be associated with ASD.

The size of an ASD and its location in the heart will determine what kinds of symptoms a child experiences. Most kids who have ASD’s seem healthy and appear to have no symptoms. Generally, they feel well and grow and gain weight normally. They said that Kailey's defect is somewhere between the size of a BB and a marble, but closer to the BB size.

Children with larger, more severe ASDs, however, might have some of these signs or symptoms:

  • poor appetite
  • poor growth
  • fatigue
  • shortness of breath
  • lung problems and infections, such as pneumonia

Lately, since turning one, Kailey has had a poor appetite, poor growth (at 20 months she is only 22lbs! So that means since she was 12 months, she has only gained 2 pounds. Cohen is at 20lbs and is 6 months old.), and fatigue. She gets really tired really quickly. When she wakes up in the morning, it’s only about an hour or two before she is ready to take a nap. She naps for 2-2.5 hours then wakes up. She will then stay up for maybe 4-5 hours then she is ready for bed. That’s only a total of maybe 7-7.5 wakeful hours a day… out of 24. In my personal opinion, that’s not good for an almost 2 year old.  In general, kids with a small ASD won't require restrictions on physical activity- which, so far, Kailey has no restrictions…

Kailey’s murmur is small, so she simply needs to visit a pediatric cardiologist regularly to ensure that there are no problems. They say that often, small defects will close spontaneously without any treatment during the first years of life. Kailey’s doctors want to close her defect by the time that she is 3 years old. That’s just a little over a year away! They would do it by using a method called Cardiac Catheterization. Meaning that they would insert a thin, flexible tube called a catheter into a blood vessel in the leg that leads to the heart. A cardiologist will guide the tube into the heart to make measurements of blood flow, pressure, and oxygen levels in the heart chambers. A special implant will be positioned into the hole in the septum and will flatten against the septum on both sides to close and permanently seal the ASD.

We are hoping and PRAYING that we will not have to do either of these procedures. We hope that her heart will heal on its own- like her father’s did. We go tomorrow (well, I guess today) to the cardiologist to get an ultrasound of her heart to make sure that everything is okay. Hopefully we will see a change, and that it is getting smaller. So far it hasn’t decreased in size since they found it when she was 4 months old.

Hoping that tomorrow will go well!
<3 Kayla

P.s- Kailey went potty in her big girl potty on Monday! Which ironically was the same day she went to the dentist- and might I add, did very well! She got a balloon, a slinky, and a sticker! I'm so proud of my little girl. She's growing up too fast! But I'm thankful that the diaper period is almost over! haha.

Baby Belly #2

I've really neglected this blog. Bad me! Oh well, I've been trying to promote my business lately, and I've had a few orders!! But that's not really an excuse, now is it? NOPE... lol...


My second pregnancy went so well! I didn't have as much heart burn with Cohen as I did with Kailey. Thank the heavens! I did, however, have horrible, agonizing heartburn in my third trimester. I had that with Kailey too, but it wasn't that bad with her... Either way, both my babies came out with a lot of hair (even though Cohen's fell out! haha). I feel really bad because I didn't take as many mommy pregnancy pictures with Cohen as I did with Kailey. (Come to think of it, I don't take near as many pictures of either one of them now as I did when Kailey was 0-6 months old! :[ I'm horrible!) But, anyways, here are some pictures of my pregnancy with Cohen. Please forgive the horrendous stretch marks! I got them all from Cohen (Minus like 2)!!! Boys are a pain! lol. But you gotta love 'em!

18 weeks 6 days...
[cause EVERYDAY counts!]

32 weeks 5 days here :]

Maternity pictures! :] 33 weeks 2 days!

I don't remember exactly when this was taken,
but I was somewhere around 35-36 weeks :]

And as for the baby shower!!! It was amazing! with amazing gifts!! :] I loved all the cute outfits and onesies! And I also got a diaper cake from my mother in law. Had never seen one before then, but it was really cool!! (oh, my business, Little Teapot Designs, does diaper cakes too!) Here's some pictures!

Before everyone got there :]

Baby bath tub! ;]
[sorry it's sideways. Not sure how to turn it on here...]

My mother in law LOVES tigger!

NB onesie! soooo tiny!! (he was almost too big for this!)

The cake :]

 <3 Kayla

P.s- My baby girl is 20 months old today!! Only 4 months till her birthday bash!! :]
Time flies so quickly! Cohen will be ONE in 5 1/2 months!! WOW!